Most of us have had flu and suffered aches and pains all over their bodies and just wanted to sleep until it all goes away, now imagine feeling like that and people not believing you. Wanting to work, look after the family or even just look after yourself and not being able to. You like i would like to know why? you would like to know how to make it better. With fibromyalgia people struggle for years it is estimated 2% of the population will develop this illness mainly women but far fewer will be diagnosed.
Fibromyalgia means pain in the muscles and fibres surrounding them, But this doesn't reflect current understanding of the condition. Central Sensitisation syndrom or pain amplification syndrome would better describe this illness.
From what ive read this illness is likely to have more effect on sufferers than any other form of chronic pain or chronic illness which means fibro sufferers will suffer the most .
Fibro symptomes include.
Chronic widespread pain,
Hypersensitivity to pain and other stimuli,
chronic fatigue, cognitive dysfunction, (inc memory loss and lack of concentration, irritable bowel syndrome, irritable bladder, reflux disorder, headaches and migraine, restless leg syndrome, tremors and loss of cordination. So just imagine how you would feel if you had to live with this, this is my life.......
Monday, 10 June 2013
Day Of Diagnosis
Day of diagnosis, i woke up and got ready to go to the hospital, today was the day i was going to get a diagnosis to an illness that i havent had an answer to in over a year. I had been experiencing a few different ailments over the last year it started in may 2012 when i started getting a lot of panic attacks for no reason, it got so bad i was unable to walk out the front door without one starting. Then that eased off and i went back to work, i work in a shop as a team leader. Anyhow i noticed that shifts were getting harder i seemed to struggle with pain in all joints, back ache seemed to be my second name but i put it down to my age and size im no size zero haha.This went on for a few months until New years day 2013 and after a particularly hard shift i gave in and went to the dr's who for the next month went through so many tests i started to feel like a pin cushion, then the scans and x rays started again no answers as to why i was getting so much pain it didnt make sense i hurt everywhere arms legs head my total body i had been on so many painkillers and was still in pain, so now i was off to see a rheumatolgist to see what she thought it would be. She had my diagnosis FIBROMYALGIA ( chronic pain ) all over your body. No cure and will always be there, she gave me some paperwork to read through to explain her diagnosis then sent me on my way, no followup or anything not to me anyhow. She wrote to my dr telling her what painkillers i needed to try and that was it, ive been on a combination of tablets since then i cant say they work at the moment cos i am still in pain
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